Nov. 7-8

     November 7th, 43 days old. Collin is doing well today although he is still dropping in heart rate a little. An echo was done on his heart and the pediatric cardiologist said Collin's heart looks fine. As a result, both heart medications were turned off, which is good news. He is also down to 2 antibiotics and sitting about 30% oxygen. The morphine drip has been off for 24 hours now and he only receives it when he needs it. The things we are working on right now are keeping the heart rate steady, tolerate feeds, poop and keep losing the edema. With the edema his weight jumps around the low 3 lb. area.
Collin's doctors and nurses are so nice. They keep us well informed and we really enjoy their company. They are good to us and especially to Collin. Today I am grateful for the Relief Society sisters in my ward. They are so good to me and my little family. They keep us well fed as well. I am grateful for my visiting teaching ladies and for the ladies I teach too. Mommy and Daddy love you so much sweat heart! We are so proud of you. Keep up the good work and keep on fighting. Like Uncle Grant has said before, "No offense to to the comic book Superman but he doesn't have superhuman strength like my nephew!!!" Keep fighting buddy, we love you so much!!!" Thanks Uncle Grant.

     November 8th, 44 days old. Collin is having another good day. They upped his feedings to 1 mL every 6 hours and so far, so good. He pooped a little this morning. The doctor is still worried about the fluid in his brain and his ventricles still being enlarged. He is still off his heart medications and his heart looks good. We think the heart rate dropping issue comes from needing suctioning from his lungs and pressure in the brain. But other than that we are having a good day. No matter what we will always love you Collin J always and forever. We are very grateful to have you here with us.
Today I am grateful for my family. They have always been there for me through good and tough times. They have always been very supportive to Robert and I and now Collin. We are a very close family and we always know what's going on with each other. I love my family very much. Thank you everyone for all the love, prayers, support and blessings.